About the service
The paediatric epilepsy nursing service provides specialist support to children who have a diagnosis of epilepsy or who are suspected to have epilepsy, and their families, in the Barnsley area. We are a community based service and provide support in a variety of settings including patients’ homes, schools, nurseries, hospital clinics or over the telephone.
We work closely with our partnership services in health, education, social care and the voluntary sector and provide education packages for staff within these areas. We have established close links with staff and services from the acute hospital where we help to run a dedicated epilepsy clinic every Wednesday morning. We also work closely with the paediatric neurology team in Sheffield and support their epilepsy clinics each month in Barnsley.
The paediatric epilepsy nursing service in Barnsley provides a wide range of services within the local area. Some of our key aims include:
- Providing high quality evidence-based care for children with epilepsy
- Supporting children and young people with epilepsy to increase their understanding of the condition
- Providing training and support to those who care for children with epilepsy
- Support smooth and timely transitions to adult epilepsy services
- Increasing awareness of epilepsy within the local community
- Promoting service development to best meet the needs of children with epilepsy and their families
Why would someone choose the service?
- The parents of carers of children who use our service often report that they feel “reassured and relieved” when they have met with us
- In our ‘patient and public feedback’ audits patients and parents consistently report that they feel that our service reduces the need for their child to be admitted to hospital, and the need to access GP appointments
- The service also plays a key role in sharing information about the child with a variety of services and parents report that they find that this reduces their anxieties about their child being in school, nursery, respite etc
- As a service, we make sure that we are up-to-date with the latest information and evidence and that the care and support that we provide is considered to be best-practice and in-line with the guidance provided by organisations such as the National Institute for Health and Care Excellence
Staff you may meet
- There are many people who work behind the scenes to keep services running and you may meet them in hospital or community settings. They include porters, cleaners, plumbers, electricians, decorators receptionists and secretaries who all work to make sure healthcare settings are kept clean, tidy and safe.
- Nurses who choose to specialise in the mental health branch of nursing work with GPs, psychiatrists, psychologists, and others, to help care for patients. Increasingly, care is given in the community, with mental health nurses visiting patients and their families at home, in residential centres, in prisons or in specialist clinics or units.
- We have a range of health workers who all have different specialities. This could be in a certain condition, a therapy or the advice they can give you. Our specialists our highly skilled and trained professionals, ready to offer you help and advice whenever you need it.
Why a professional should choose the service
The paediatric epilepsy nursing service is extremely well placed to coordinate the care of children and young people with a diagnosis of epilepsy in Barnsley. The service has been established for a number of years and we have developed strong links with partnership services in health, education, social care and the voluntary sector. These partnership arrangements include the day to day working alongside our medical colleagues in primary, secondary and tertiary health services.
The service supports the assessment and ongoing management of children with epilepsy in the community and continues to reduce the misdiagnosis of epilepsy, whilst also reducing costly admissions to the acute hospital for epilepsy, and the need to see GP’s for issues relating to epilepsy.
The paediatric epilepsy nursing service plays a key role in child protection and is involved in the safeguarding of children at all levels locally. The service also continues to develop links in within the community to provide improved services to our patients. This has included annual patient reviews in settings such as Greenacre Special School for our children with co-morbid complex needs/disabilities, the provision of a support meeting for adolescents with epilepsy, and the development of a nurse-led transition clinic to adult epilepsy services. We are also currently exploring the possibility of holding clinics for adolescents with epilepsy within the well-being areas of the secondary schools in Barnsley.
All of the above has been developed to meet the identified service outcomes which have been designed to ensure that we can provide high quality evidence-based and best-practice care to children with epilepsy and their families, resulting in improved outcomes, more efficiently and at less cost to the NHS.
- Point of contact
- Specialised clinics
- Advice and information
- Education and training
- Counselling and support
- Risk management
- Medicines management
- Virtual/video appointments, in addition to the face-to-face and telephone appointments
- To reduce seizures and side-effects to treatment in children who have epilepsy
- Empower children and their families to understand the condition better resulting in improved self-management
- Improved quality of life for children/young people with epilepsy and their families
- Reduce the misdiagnosis of epilepsy
- Contribute to a reduction in epilepsy related death and accidents
- Improve continuity/coordination of care, including the timely and smooth transition to adult services
Referrals accepted from:
A & E, Carers/family, Consultants, GP staff, GPs, Health visitors, Hospital staff, Local authority staff, Midwives, Other NHS services, Other Trust services, Patients(self-referral), Police, Schools, Voluntary services
- Children/young people aged 0-19 years with a diagnosis/suspected diagnosis of epilepsy