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Community Macmillan Specialist Palliative Care Service
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About the service
The Community Macmillan Specialist Palliative Care Service supports people with advanced progressive illness and their families. The service is available to adults who live in Barnsley and are registered with a Barnsley GP.
Referrals to the team can be made from the point of diagnosis to last hours/days of life. The specialist team includes:
- Clinical nurse specialists
- Clinical nurse specialists for care homes / community hospital
- Specialist dietitian
- Specialist occupational therapist
- Specialist physiotherapist
- Specialist social worker
- Medical consultants
- Administration staff
The team are all specialists in palliative care and provide additional support to those professionals already giving palliative care and support (for example district nurses and GPs). They offer direct care for people with persistent, severe or complex issues relating to their illness. Palliative care needs may be physical, psychological, social and spiritual.
The team works in partnership with other services and have particularly close links to Barnsley Hospital palliative care team and Barnsley Hospice.
Why would someone choose the service?
- They all have specialised training and skills and will help people with a palliative diagnosis, and those important to them, to receive the best possible palliative and end of life care.
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The team works closely with other services in Barnsley, supporting a coordinated approach to care through collaboration with GPs, community nurses, Continuing Healthcare, Barnsley Hospice and the Barnsley Hospital Specialist Palliative Care Team.
- The team will offer a service which thinks about you as an individual.
- In a recent survey when current patients and families were asked to evaluate the service:
- 100% of people felt they were involved in decisions about their care.
- 97% felt they were given enough time to discuss their concerns with the health professionals.
- 100% said they were extremely likely to or likely to recommend the service to their family and friends if they needed similar care.
Staff you may meet
Why a professional should choose the service
- The team is a multi-professional team, ensuring a holistic and person-centred approach.
- All members of the team have specialist training, including advanced communication skills, and possess expert knowledge and skills in palliative care, including pain and symptom management.
- The team has established networks and relationships with health and social care providers in Barnsley, supporting a consistent approach to both generalist and specialist palliative care.
- People referred to the service via the team’s referral form will be contacted according to the referrer’s assessment of need, for example: urgent referrals within 24 hours of receipt, planned referrals within seven days, and proactive referrals after seven days. The duty Macmillan Clinical Nurse Specialist welcomes discussions regarding urgent referrals, as they may be able to provide advice or signposting (Monday to Friday, 9.15am to 4.45pm).
- When the team is involved, an individualised care plan will be developed in partnership with the person and, where appropriate, those important to them. The plan will address preferences for future care, including preferred place of care, preferred place of death, ReSPECT conversations, and completion of ReSPECT plans where required.
- The service is compliant with relevant NICE guidance and applicable local and national policies.
- The team provides a seven day service, 365 days a year.
- The Clinical Nurse Specialists within the team are independent non-medical prescribers.
- Team members attend a weekly specialist palliative care meeting with a Consultant in Palliative Medicine from Barnsley Hospice.
- The team provides leadership for palliative care within its neighbourhoods and across wider teams in Barnsley, promoting best practice and collaborative working.
Support offered
Consent from the person for the service to be involved is required. Where a person lacks the mental capacity to make this decision, a referral may be made following a best interests decision if there is an identified need for the service.
- Following an assessment, a care plan will be developed in partnership with the person and, where appropriate, their family.
Interventions may be provided at different levels according to the person’s needs:
- Level 1: Signposting, education, or telephone advice and support for other professionals.
- Level 2: Support and education for other staff through a one-off home visit.
- Level 3: Complex needs identified that require short-term involvement.
- Level 4: Ongoing complex needs requiring longer-term involvement.
Care interventions may include:
- Education for the person, their family and other professionals to maximise quality of life.
- Symptom management support, including pharmacological and non-pharmacological interventions. This may include the management of pain, nausea, breathlessness and anxiety, although this list is not exhaustive.
- Management of emotional distress for the person and their family, including children, and support with preparation for bereavement.
- Support for the person and their family to develop strategies that maximise function, quality of life and self-care. This may include support with mobility, eating and drinking, fatigue management, aids and adaptations, social and spiritual concerns, and adjustment to the impact of illness and treatment.
Outcomes
- Optimising a person’s quality of life when they have an advancing, progressive and life-limiting illness.
- Helping the person and their family adapt to and live with their illness and treatment.
- Supporting a person to die in their preferred place of care.
- Providing the highest possible quality of palliative and end of life care.
- Providing support and education to the wider generalist team, both formally and informally.
Referrals accepted from:
A & E, AHPs, Consultants, GP staff, GPs, Hospice staff, Hospital staff, Nurse, Other NHS services, Other Trust services
Referral criteria:
Referrals to the community Macmillan specialist palliative care team can be made by any appropriately trained health or social care professional. A written referral is required with all relevant information as this will enable the team to triage accordingly.
Referral to the Community Macmillan Specialist Palliative Care Team should be considered for any patient with a life-limiting illness who has complex needs, or whose level of need is considered to be beyond the scope of the current care team. The service can be provided alongside active treatment for an underlying palliative condition.
The service is available to adults (aged 18 years and over) with advanced, progressive and incurable conditions. This includes people who require palliative care and support at any stage of their illness, as well as those who are likely to die within the next 12 months and are approaching the end of life. The service also supports their families, carers and other people who are important to them.
Patients must have consented to the referral, or, where they lack capacity, a best interests decision must have been made in accordance with the Mental Capacity Act.
Examples of referrals include:
- Uncontrolled or complex symptoms.
- Complex emotional or psychological issues affecting the patient, family, children or carers.
- Difficult decisions regarding withholding or withdrawing treatment or care, including advance decisions to refuse treatment and complex best interests discussions.
- Complex care needs during the last days of life.